PE1105, from Marjorie McCance, on behalf of the St Margaret of Scotland hospice, calls on the Scottish Parliament to urge the Scottish Government to guarantee the retention of continuing care provision for patients who require on-going complex medical and nursing care, such as that provided at the 30-bed unit at the hospice, and to investigate whether arrangements for funding palliative care provision at hospices in the context of Health Department letter HDL(2003)18 are fair and reasonable.We have considered the petition on at least two occasions since we heard directly from the petitioners. The issue has attracted considerable interest from the local MSPs, including Des McNulty, who cannot make it to today's meeting, and Gil Paterson, who has also been supportive of the petition.Does Gil Paterson want to make an opening statement on the petition? As always from now on, I should say that statements on this petition should not go on for more than two minutes.
Official Report · Committee
Current Petitions
St Margaret of Scotland Hospice (PE1105)
Speakers
Choose an MSP to read only their contributions- Frank McAveety Lab 5
- John Wilson SNP 2
- Gil Paterson SNP 1
- Robin Harper Green 1
The record
10 contributionsWhy do you say that?
I say that due to the previous experience.
It was not me. I will try my best to be brief, but the issue is quite complex.I refer members to the letter of 16 March 2009 that the convener received from the Cabinet Secretary for Health and Wellbeing. Let me quickly read out a paragraph that sums up the issue:"Turning to the funding arrangements currently in place for the provision of palliative care, as currently outlined in HDL (2003) 18, I have indicated previously that this remains a matter for discussion through the Scottish Hospices Forum".Following a meeting of the forum, the forum has basically said to St Margaret's, "You're on your own." That is not a good answer for St Margaret's because of the disparity that exists between St Margaret's and other hospices—the funding arrangements are out of kilter. In my view, it would be helpful if the committee supported the concept of the cabinet secretary having a meeting with people from St Margaret's to address the issue. If the forum cannot deal with the issue, someone else should, so the next port of call is probably the cabinet secretary.Another aspect that members will be aware of is the stay of execution that has been obtained for the 30 beds. St Margaret's is trying to have a meeting with the health board to discuss matters further, but the board is still of the opinion that St Margaret's should go to a place to which it cannot go because of the articles by which it was set up. A cross-party group of MSPs had arranged a meeting on the issue with the cabinet secretary but, unfortunately, that arrangement had to be stood down because of the swine flu outbreak. We certainly hope that our meeting will still take place. However, let me emphasise that, although word has gone out that St Margaret's in some way does not want to engage, St Margaret's is continually requesting to engage with the health board on the issues. Frankly, the sooner that happens, the better. Again, I think that the committee could be helpful in arranging that meeting, which St Margaret's has been looking for.
Do committee members have any observations or comments?
I have previously mentioned NHS Greater Glasgow and Clyde's behaviour with regard to meeting representatives of St Margaret's and, given what Gil Paterson has said, the points that I made then still seem to be relevant. If the health board is making it difficult for the hospice to meet and discuss its future, it is incumbent on the committee to write to the cabinet secretary to express its concern at the board's reluctance to have a meeting and to ask her to write to the health board, asking the chief executive and chair of the board to arrange a meeting as soon as possible and allow the issue to move forward. After all, if we cannot secure even a meeting between St Margaret's and the health board, we are failing everyone.
We can take that suggestion on.
I agree with John Wilson. Instead of expressing our difficulty in understanding the health board's reasons for not meeting St Margaret's, we should perhaps express our failure to do so, and ask the health board to explain its reasons.
We have given the health board a fair opportunity to be much more open and transparent. It is not as if it has had a great track record in that respect over the past few years, particularly given that in more than a fair share of petitions petitioners have consistently highlighted the board's approach to engagement and the provision of information.The core suggestion is that we encourage the Cabinet Secretary for Health and Wellbeing to engage directly with the health board and the hospice on the issue, and with the health board on opening up dialogue with the hospice. We will therefore keep the petition open as we follow those actions.
Members indicated agreement.
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