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New Petitions

Residential Care (Charges) (PE897)

Wednesday 9 November 2005 Public Petitions Committee Petitions 52 contributions · 8 speakers

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52 contributions
Michael McMahon Lab The Convener · Hamilton North and Bellshill
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PE897 is from Angela Smillie and calls on the Scottish Parliament to consider and debate the financial implications for elderly people with mental illnesses—such as Alzheimer's disease—of having to sell their homes to pay for residential care. A further written statement that was received from the petitioner has been circulated to members.Members will wish to note that John Swinburne MSP has lodged a proposal for a member's bill"to disregard the value of a person's home in the financial assessment undertaken by local authorities to establish contributions towards the cost of residential accommodation placements."In addition, the Health Committee is undertaking a post-legislative inquiry into the Community Care and Health (Scotland) Act 2002.I invite John Swinburne to comment before we discuss the petition.

John Swinburne SSCUP Central Scotland
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Than you for allowing me to come along and speak on behalf of Angela Smillie. I presume that members have copies of her letter, which is typical of the letters that I have received since I came into the Parliament. Anyone who saw her on television three weeks ago will know that she broke down when she was walking through her parents' empty house, which is being taken over by North Lanarkshire Council to pay for her parents' care. The legislation is well meaning, but it is flawed in that aspect.One of Angela Smillie's parents has dementia and the other has Alzheimer's disease, which is a terminal illness. She makes the case that if they were younger, they would go into care, but because they are elderly and have a home, that home will be sold to pay for their residential care. I have a copy of the letter that she received from the council stating that her parents' home would be placed in its keeping. There is the option of deferred payment, but that is a flawed option. Under that system, a council will not sell a person's home to pay for their residential care but will get them to sign a document that provides that, on their death, their home will become the council's property. However, the person could live for five or 10 years, and no one has evaluated what it would cost to maintain the property, to keep it heated and to keep the garden in a respectable condition. All that will add to the overall bill. There are also the legal costs attached to the sale of the house, and the costs incurred by the social work department in establishing whether someone has any property when it is means testing them. Professor Arthur Midwinter came up with a figure that staggered me: the average cost to a council would be between £617 and £669 per annum—a minimal amount. However, that sum does not take into account the fact that the council will have to pay legal costs and, if a deferred payment scheme is entered into, the maintenance costs. The Community Care and Health (Scotland) Act 2002 is a forward-thinking, worthy piece of legislation, which people would kill to have on the statute book south of the border. It looks after the care and home care of the elderly, but why should an older person who is suffering from dementia be treated any differently from a younger person who is suffering from dementia? That is discriminatory and it should not be allowed to happen. That is the basis of Angela Smillie's case. Eighteen years ago, Angela Smillie's parents willed the house to their family. She says in her letter that her parents have worked hard all their days. They are not bad people—they are not drug dealers and have never committed a crime in their lives. It is not acceptable that they should have worked hard to buy their home only to have it taken away to pay for their care at the end of their lives. It is discriminatory: they are ill and elderly, but if they were ill and not elderly they would be treated differently. A person with Alzheimer's who is 50 is treated differently from a person with Alzheimer's who is 65-plus. The Parliament must urgently consider that aspect alone, as well as the moral aspect of stealing a person's home to pay for their care. Do members have any questions? I saw a couple of eyebrows being raised when I mentioned the sum of £669. I raised my eyebrows too, because I thought that the sum would be far higher than that.

John Farquhar Munro LD Ross, Skye and Inverness West
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The letter from Angela Smillie refers to the ownership of the property and the fact that the owner made a will some years ago. I now understand that the will can be overruled by the local authority.

John Swinburne SSCUP Central Scotland
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That is one of the major flaws in the 2002 act. Eighteen years ago, Angela Smillie's parents made a will in which they left their home to their family. At that time, they did not think that they would end up with dementia or Alzheimer's, but that is what has happened. Only 4 per cent of the senior citizen population find themselves in that situation. I could not calculate the odds of both parents finishing up in that situation—it is beyond my mental capacity to work that out. The other 96 per cent of my generation worry intensely about ending up in such a situation. John Farquhar Munro made a good point. Although it was the wish of Angela Smillie's parents that their home be left to their children, the state is denying them that wish. The council has the power to move in and take over their home.

John Farquhar Munro LD Ross, Skye and Inverness West
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I was not aware of the situation, but if it is factually correct that it exists, we should make strong representations on the issue.

Helen Eadie Lab Dunfermline East
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Mr Swinburne, in the course of doing the preparatory work for your proposed bill, have you found out how many families choose to rent out their parents' property while their parents are in a home? That is one way of meeting, or off-setting, some of the costs of care in a home. Do you know how many families in Scotland do that?

John Swinburne SSCUP Central Scotland
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Thank goodness for the Freedom of Information (Scotland) Act 2002. The situation might be easier now, but for the past two and a half years, getting such information from councils has been like trying to draw an eye-tooth. The blank answer that we got from all but 18 of the councils was that the information was not held centrally. Eighteen out of the 32 councils responded—in that regard, councils up north seemed to be better than those in the central belt—and gave us chapter and verse on the relevant numbers. However, quite frankly, I could not deal with two and a half years' accumulation of information.I am aware that people can rent out their homes, but we must remember that we are talking about people who are ill, alone and at the lowest ebb in their life. The council can sell someone's house only if they live alone. If two people live in a house and one of them needs to go into a home, the council cannot touch the house. That amounts to another discriminatory act. Let us imagine a terrace in which three elderly ladies live in three different houses. The first lady lives in a rented house, the second lady lives with her husband in the house that they own and the third lady owns her house, but lives by herself. If the three ladies end up in care, the lady who rents and the lady who has a husband will have 100 per cent of their care paid for, but the single lady will have her home sold to pay for her care.

Helen Eadie Lab Dunfermline East
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Of the local authorities that replied to you, did any of them answer the question that I have just asked, which was about how many families rent out their parents' property while their parents are in a home?

John Swinburne SSCUP Central Scotland
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They did not answer that question. The door to going down that road remains open to anyone who gets proper legal advice, but we are talking about people who are frail, vulnerable and elderly, whose memory might be waning a little. I do not mean that they have dementia or a similar condition, but that they are not quite as sharp as they were when they were younger. When an official comes and asks such a person to sign a document, they will probably sign it, even though they might worry about doing so. Signing that document will mean that they will not get the opportunity to pass on the results of their hard work to their family, which is all that they want to do. It would cost very little to allow such people to do that.

Jackie Baillie Lab Dumbarton
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I am certainly not as sharp as I once was, so I would like to clarify a few points. Your proposal for a member's bill deals with all older people, but the petition deals with older people who have a mental illness.

Jackie Baillie Lab Dumbarton
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I take it that you are supportive of the narrow terms of the petition.

John Swinburne SSCUP Central Scotland
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In fact, 31 per cent of the people who are in residential care have mental problems such as dementia.

Jackie Baillie Lab Dumbarton
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Sure, but 4 per cent of the elderly population was the statistic that you quoted earlier.

John Swinburne SSCUP Central Scotland
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Yes, but that figure related to the number of senior citizens who own their own home—4 per cent of the 67 per cent of senior citizens who own their own home find themselves in that position. When the broader picture is taken into account, the number involved is small.

Jackie Baillie Lab Dumbarton
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I understand that; I wanted to make absolutely sure that I had captured what you were saying. Am I also correct in saying that there are three different elements to the costings? The first is personal care, the second is nursing care and only the third element—board and lodging—is the cost that we are concerning ourselves with today.

Jackie Baillie Lab Dumbarton
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Thank you. That is fine. Do you accept the argument that, irrespective of age, it is legitimate to expect people to contribute to board-and-lodging costs? Surely they would incur those costs in their own homes anyway.

John Swinburne SSCUP Central Scotland
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That is an argument that many people have put forward strongly to justify what is happening. I wish that they would apply it to criminals. There are a lot of rich people in jail and yet it costs £33,000 per annum to keep them incarcerated. They have all the mod cons and all the rest of it—I do not need to run through all the benefits; members know what they get.

John Swinburne SSCUP Central Scotland
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I am told that prisoners have free televisions—

Jackie Baillie Lab Dumbarton
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You do not need to tell me, Mr Swinburne—that is fine.

John Swinburne SSCUP Central Scotland
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I will not go along that line in that case. As I said, it takes £33,000 per annum to pay for a prisoner's care, and prisoners are not means tested. Some prisoners submit claims when they leave prison because they have to slop out and get up to £8,000 in compensation. That should go towards the £33,000—prisoners should be means tested a little bit. That does not happen, yet—unfortunately—elderly people are means tested in the situation that I described. Arthur Midwinter analysed the situation and put forward the information in a way that separates out the care costs—some people get only standard care whereas others get nursing care plus personal care. He took the average weekly income of £206 for a single pensioner household as the basis for his calculations. On pages 18 and 19 of my consultation document, which has been e-mailed to members, you will see that the calculations leave a balance of £11.88 per week.

Jackie Baillie Lab Dumbarton
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I am not looking not for chapter and verse on your bill but to test your proposition that what is happening is discriminatory. If such costs were applied to all, irrespective of age, surely the question of discrimination would be removed.

John Swinburne SSCUP Central Scotland
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Yes. There are various roads that we can go down. The situation also applies to people with a mental illness.

Jackie Baillie Lab Dumbarton
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You talked about the obvious costs of maintaining and selling a property; you said that those costs were not accounted for in any way. If those costs were to be taken into account, would that largely resolve the problems that people experience?

John Swinburne SSCUP Central Scotland
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If those costs were to be taken into account, and if councils were to do their book-keeping in the way that Arthur Midwinter did his, the costs to councils of selling a person's home would be made clear. People cannot sell their homes without costs—a council makes only just over £669 top whack as a result of selling the home of a pensioner who is on the average income of £206 per week. If the legal costs of selling the house and the social work costs were taken away from that figure, there would be no profit at all for councils.Of the large block of money—£500 million or so—that was laid aside for the deferred payment agreement scheme, it is strange that only £104 million was taken up by councils to offset the financial disadvantage of deferring the sale of a house. The Executive has made the money available in the deferred payment scheme, yet councils are not taking it up in the way in which the Executive expected them to do.

John Scott Con Ayr
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On a point of clarification, where is the £400 million if it is not being taken up and used by the local authorities? I find that surprising.I appreciate the problems that you are raising. I have many constituents who are similarly disadvantaged—as they see it—and have to sell their houses. What would you propose as a more equitable and fair way of funding the long-term care that is required? It has to be funded and, by and large, that funding has to come from local authorities. Given the finite resources that are available to local authorities, what services would you cut?

John Swinburne SSCUP Central Scotland
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I have a fundamentalist attitude to the issue. When I started paying my national insurance in 1948, when Lord Beveridge's welfare state recommendations were implemented, I believed that the national health service would look after us from the cradle to the grave because we had paid into the scheme all our lives.Now, the state discriminates against sick elderly people and takes their homes from them to pay for their care when everyone else gets care throughout their lifetime—that is, from the cradle until they are on the point of going into residential care. In between those times, the way in which our health service operates is a tremendous credit to this country.You ask how the care should be paid for. The Conservatives might not like this, but I think that we will simply have to dig a little deeper into our pockets. The statistical evidence that is presented by Arthur Midwinter shows that there is little profit to be made from all the angst and hardship that we are imposing on elderly people. My proposal would not cost a great deal more than is already being spent on the majority of people. The 4 per cent of elderly people who are being treated in the way that I have outlined should be treated in the same way as the majority.

Campbell Martin Ind West of Scotland
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The situation that you have described and which Angela Smillie has written about is fundamentally wrong. You have been asked how you might fund the additional cost of caring for the elderly people about whom you are talking. However, you know as well as I do that politics is all about priorities and that if, for example, we did not spend billions of pounds on nuclear missiles or write blank cheques to wage war on Iraq, we could perhaps look after our senior citizens and meet the cost of their care.Jackie Baillie made a point about whether elderly people in care should be expected to pay for their food and board. If someone is in hospital with a long-term illness, are they expected to pay for their bed and food while they are there?

John Swinburne SSCUP Central Scotland
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When they go into hospital, an elderly person immediately surrenders their pension, which pays for their care.No one worries about what it costs to keep a prisoner in jail. The money that is spent on them does not come out of their ill-gotten gains. I am talking about honourable people who should be treated honourably and decently.An elderly person does not eat much, anyway. Having gone round many care homes, I can say that a person in this room probably eats two or three times the amount of food that the average resident in a care home eats. For all that they eat, it is a sin that we neglect them in this manner.

Campbell Martin Ind West of Scotland
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While they are in hospital, they surrender their pension to help pay the cost of their care. They also do that when they are taken into residential care.

John Swinburne SSCUP Central Scotland
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In a care home, an elderly person surrenders their pension and their secondary pension, if they have one. I am not complaining about that. They still get means tested and many of them have good pensions from their work; those pensions allow them to go into a care home without having to sell their home because they are sufficient to cover the costs. People who are in that situation would be automatically expected to pay for their care. I am not worried about that.In America, the value of a person's home is not used in the assessment of someone's ability to pay. I do not see why we should act any differently in this country. Too many people who have worked hard and who did what they thought was the right thing to do when they bought their homes under the right-to-buy scheme find that their decision is coming back to haunt them. However, in 96 per cent of cases, that does not happen and the people in that 96 per cent should not have to worry that they might have to go through what the people in the 4 per cent are going through. People can see what is happening all around them—every MSP has dealt with cases involving the situation that I am talking about—and it is unacceptable that, in the 21st century, we are treating our elderly in this despicable manner. It is shameful.

Campbell Martin Ind West of Scotland
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So the answer is that politicians should get their priorities right and stop stealing pensioners' homes.

John Swinburne SSCUP Central Scotland
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You have got it in one. The situation is not good enough.

Charlie Gordon Lab Glasgow Cathcart
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Does Mr Swinburne feel that Parliament should remove from local authorities the discretionary power to charge for board and lodging?

John Swinburne SSCUP Central Scotland
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When the Sutherland report was published, it was hailed as the panacea for all ills and was praised across the board. The Lib Dems went for it 100 per cent. The Labour Party went for it nearly 100 per cent—it considered the financial implications and produced a slightly flawed solution to the problem. That has left a little glitch in the system, whereby some people must sell their homes.

Charlie Gordon Lab Glasgow Cathcart
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If we removed the discretionary power, I presume that the funding gap would be filled by the local council tax payer or the national taxpayer.

Charlie Gordon Lab Glasgow Cathcart
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Is there a danger that the law of unintended consequences might kick in? If the service became free, would a big rush start to put into care many people in the categories mentioned who are looked after at home or by relatives? Doing that would mean that neither the individual nor their family would incur cost. Would that outcome be desirable?

John Swinburne SSCUP Central Scotland
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Charlie—if I can call you that—I assure you that the last thing that people of my generation want is to go to see a doctor and find out that we are ill. The best thing that could happen to people of my generation would be full implementation of the Kerr report, which would vastly reduce the number who require to leave their own homes, where they want to stay. They do not want to leave their little house—their wee castle—for which they have paid.

Charlie Gordon Lab Glasgow Cathcart
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We are talking about a client group whose relatives—usually their children—have often taken charge of their affairs. The relatives may have power of attorney, for example. Carers experience stresses and strains and they might transfer their loved one into institutional care if they knew that doing so would incur no cost and would remove some stresses and strains, although they might be replaced by other pressures such as feelings of guilt from time to time. I am worried about the law of unintended consequences. The proposal could create a big shift of vulnerable people into institutional care.

Charlie Gordon Lab Glasgow Cathcart
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Is it conceivable? Have you thought it through?

John Swinburne SSCUP Central Scotland
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There are bound to be instances that would bear out your argument but, by and large, people do not want to go into a residential home or care home. They want to stay in their own home. If Andy Kerr succeeds in implementing Professor Kerr's recommendations and providing more ancillary staff in the community, people will be happy to stay in their own homes. There is no doubt that the percentage who are a danger to themselves will have to go into care homes, but an awful lot of people who are care home residents could easily be looked after in their own homes at one quarter of the cost to the community.

Charlie Gordon Lab Glasgow Cathcart
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If you think that Professor Kerr has a comprehensive answer to such issues, would it not be better to implement that than to approach the issues in what could be argued to be a piecemeal fashion?

John Swinburne SSCUP Central Scotland
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The only problem is that Professor Kerr's comprehensive answer, which I hope that Andy Kerr will implement, will not provide an immediate solution. My proposal could be introduced much more quickly and would remove the anomaly once and for all. You have only to consider the situation. If you were to go to a care home and look deeply into the eyes of someone who has been placed in that situation, you would see the hurt there. One cannot put a monetary value on that. Those people feel that the state has kicked them, and kicked them, and kicked them again.I will not rest until this piece of legislation has been put right. The only way of putting it right is to do what is done in the United States of America—take the person's home out of the financial equation. People would still have to pay for their care if they could afford to do so. We will have to stump up for an infinitesimally small percentage. It is annoying to know that a solution would be achievable at no great cost. I cannot see people taking advantage of such an arrangement. The other day, I heard a chap from the pharmaceutical industry argue that if free prescriptions were introduced, people would be queuing up for them. The idea that one would take a day off work to see a doctor for a prescription that is worth £6 is not realistic. People do not want to have to get medical care; they do not want to see doctors; they do not want to have to go into a care home. However, unfortunately some of them have to do those things. To take away someone's home to allow them to go into a care home is, quite frankly, criminal.

Michael McMahon Lab The Convener · Hamilton North and Bellshill
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I want to come to recommendations on how we take the matter forward.

Helen Eadie Lab Dunfermline East
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I agree. We have explored the issue quite a bit this morning. It raises wider issues, such as what we think about inherited wealth, although the debate on that will have to take place elsewhere. That comes through in the petition.I suggest that we pass the petition to the Health Committee, which is doing one of its first post-legislative scrutiny inquiries. It might want to consider this issue as part of that inquiry.We should refer the petition to John Swinburne, because he is undertaking a consultation across Scotland on his member's bill.

Michael McMahon Lab The Convener · Hamilton North and Bellshill
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Are members happy with those suggestions?Members indicated agreement.

Michael McMahon Lab The Convener · Hamilton North and Bellshill
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John, we will forward the petition to you so that you can take cognisance of it. We will see what the responses are from elsewhere.

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