If members will just bear with me a moment, I will gather my thoughts and my papers to respond to the many points that have been raised this afternoon.
I start by thanking my friend and colleague, Clare Adamson, for lodging this important motion and for providing us all with the opportunity to recognise Breast Cancer Now’s wear it pink day 2026. Of course, we all pay tribute to Breast Cancer Now and to the dedicated staff the length and breadth of Scotland, and, as others have done, I highlight the importance of volunteers.
I want to acknowledge the many contributions that we have heard tonight. Clare Adamson, Keith Brown and Amanda Bland all brought to the chamber very personal stories of loss as well as hope. Karen Adam, Stephen Kerr and Monica Lennon all spoke very powerfully of the worries that people can have for their own health or that of their loved ones.
In the time that I have, I will endeavour to address the issues that were raised in relation to data collection, and access to new treatments. I will also address the points about equality and those about families and young people.
I am pleased to acknowledge the motion’s recognition of the work of Breast Cancer Now. As we have heard, the charity makes an invaluable contribution to people who are affected by breast cancer through its research, campaigning and support services while amplifying the voices of patients and their families. I also recognise the vital contribution of Scotland’s third sector.
The success of the wear it pink campaign for more than two decades demonstrates the generosity of people across Scotland and the wider UK. Since 2002, the campaign has raised more than £40 million to support research and care while raising awareness of breast cancer.
As other members have done, I acknowledge the tribute paid in the motion to our late friend and colleague Christina McKelvie. I am wearing some beads that Christina gave me for my 40th birthday, which was not yesterday. Like Karen Adam, I am well on the wrong side of 50, and I feel very blessed that that is the case. Christina was a passionate advocate for women’s health, who encouraged women to be aware of breast cancer symptoms and to attend screening when invited. We have heard that message over and over again tonight—that screening saves lives. Her commitment to improving the lives of women across Scotland continues to inspire many of us.
As we have also heard, breast cancer remains one of the most common cancers in Scotland, with more than 5,000 people diagnosed each year. That is why it continues to be a national priority for the Government and for NHS Scotland.
There are reasons to be hopeful. Outcomes continue to improve, and the latest data from Public Health Scotland shows that 86.7 per cent of women who were diagnosed with breast cancer between 2018 and 2022 are expected to survive for at least five years after diagnosis. Our “Cancer Strategy for Scotland 2023-2033” and the accompanying cancer action plan set out a clear vision to improve prevention, diagnosis, treatment and care. We also continue to improve breast cancer services through national clinical management pathways and quality performance indicators. The breast cancer clinical management pathway helps to ensure that patients receive consistent, high-quality, evidence-based care from diagnosis through to treatment and follow-up.
Early diagnosis is absolutely critical. Scotland’s national breast screening programme plays a key role in detecting breast cancer before symptoms develop. Eligible women who are aged 50 to 70 are invited for screening every three years. Work is under way to modernise the service following the reporting of the breast screening modernisation report. Update and equity of the service remain a priority while that work takes place, particularly for women who live in our most deprived communities. That is why all NHS boards have implemented equity strategies for screening, which is supported by £1 million of Scottish Government investment. We are also empowering people in our most deprived communities to get checked early through the be the early bird marketing campaign and various roadshows.
The other point about equity that many members have raised relates to location, geography and rurality. We want as many people as possible to be treated as close to home as possible, and we continue to work with health boards when, for example, there is a need to travel. For some of the specialist services, we know that people will have to travel when it is clinically appropriate. When travel is appropriate, I very much expect health boards to work collaboratively and to make arrangements that are person centred in order to make things as easy as possible.
To ensure that women in Scotland feel valued, supported and are aware of the important health information that they need to live longer and healthier lives, a card will be sent to every woman resident in Scotland around their 50th birthday, and it will be known as the Christina card in honour of our friend Christina McKelvie. It is intended that the card will include helpful health information such as how to access menopause support, information on eligibility for various screening and testing programmes and information on checking for lumps and bumps.
Clare Adamson and many other colleagues spoke about the importance of data collection. I very much recognise that improving data collection has been a long-standing priority for Breast Cancer Now and for patients. Having high-quality data is essential if we are to understand patient experiences better, plan services effectively and continue to improve outcomes.
I confirm that, for the first time, the methodology for collecting metastatic breast cancer data in Scotland has been agreed and that we are on track to meet that commitment before the end of 2027. That is built on the work undertaken by Jenni Minto, who agreed a methodology for the collection with Public Health Scotland just prior to the election. Public Health Scotland is now working hard to launch that over the coming months.
Keith Brown raised important points on the collection of data on sepsis and on secondary breast cancer, which I will take away and consider.
We know that there is always much more to do, but I hope that I have been able to demonstrate our commitment to improving care and outcomes for patients. At a time of sustained pressure on our NHS, any clinical time devoted to data collection or audit must deliver meaningful information that can help to improve services and patient outcomes. I hope that I have demonstrated that we are moving forward with data collection.
Members have spoken powerfully about new and innovative treatments. Clare Adamson spoke about the necessity of getting the right treatment at the right time. Recent advances in precision medicine, including elacestrant, which was recently approved by the Scottish Medicines Consortium, are creating new treatment options for some patients living with advanced breast cancer. However, access to some of those medicines depends on genomic testing being available to identify the patients who are most likely to benefit from it.
I advise members that rapid planning is under way to secure access to the necessary testing, which will be provided via the INTEGRATE circulating tumour DNA—ctDNA—platform study, which has been set up at the west of Scotland innovation hub. Sites will be opened across Scotland, with initial testing being sent away to accredited laboratories in the NHS. I am happy to provide any member with further information. I underscore the point that we are working hard with industry and partners in the NHS, in recognition that everybody deserves access to the best treatment at the right time.
I will take a moment to acknowledge the powerful points that have been made about the importance of families. We have the children’s action plan, and we are committed to implementing Isla’s principles, which are based on the experience of a young woman—a teenager—who died of breast cancer. That work involves raising awareness based on the best evidence on unusual and persistent symptoms.
I again thank Clare Adamson for securing the debate. I recognise the continued contribution of the NHS, the third sector and patients themselves. By continuing to invest in awareness, screening, treatment, research, innovation and patient support, we can continue to improve outcomes for people affected by breast cancer across Scotland, ensuring that they receive the very highest possible standard of care.
Dionne Hossack is doing the London marathon, and our own barista, Kirsty Rafferty, is completing the Supernova challenge. I am sure that they are both looking for our support to raise funds—if I am allowed to say that. I am not sure if I am abusing my position by mentioning that but, if I am, I will just take six of the belt.
Once again, I thank everybody for their contribution, and I thank you, Presiding Officer, for your patience, as I have gone way over time.
Meeting closed at 18:36.