Parliament Workbench
Data: Official Report to 12 Nov 2026

Official Report · Committee

Petitions

Paroxysmal Nocturnal Haemoglobinuria (Access to Therapy) (PE1401)

Tuesday 8 March 2016 Health and Sport Committee About 11:30 Petitions 3 contributions · 2 speakers

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The record

3 contributions
Duncan McNeil Lab The Convener · Greenock and Inverclyde
link

Okay, folks, we have got back to our agenda. I see that our audience has been released for good behaviour, after listening all morning.

Item 4 is consideration of three petitions that relate to access to new medicines and medicines for rare conditions. As members can see from paper HS/S4/16/13/11, the petitions were central to the committee’s consideration of access to new medicines. As you will remember, the issues were discussed with the cabinet secretary at our meeting last week.

Members are aware that the system for accessing new medicines has been considerably changed. The changes have been broadly—indeed, extensively—welcomed, as we heard in evidence. Even if not everything is perfect, the system has certainly improved. You will recall that the Scottish Government is about to carry out a review of the changes to the medicines appraisal system, which I am sure that we all welcome. Given that all that work has been done, I ask the committee to consider whether to close PE1398, PE1399 and PE1401. I invite members’ views.

Bob Doris SNP Glasgow
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I think that it would be reasonable to say that the Government has indicated that it does not regard the review process as an end in itself. The Government acknowledges that, as technological and pharmaceutical advances are made and expectations evolve, processes in the Scottish Medicines Consortium must also evolve. Although there is yet another review, which will build on the improvements that have been made, I am content to close the petitions on the basis that the review will not be the end of the process and the issue will be work in progress as advances outstrip structures.

Duncan McNeil Lab The Convener · Greenock and Inverclyde
link

Do we agree to close the petitions on that basis?

Members indicated agreement.

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