Written Question · S7W-04550 · Session 7
What assessment it has undertaken to establish the number of patients living with Fredericks Ataxia in Scotland.
The question
To ask the Scottish Government what assessment it has undertaken to establish the number of patients living with Fredericks Ataxia in Scotland.
The answer
The Scottish Government has not undertaken a specific assessment to establish the number of people living with Friedreich’s ataxia in Scotland.As a rare condition, prevalence estimates are generally derived from published research and clinical expertise rather than routine national data collection.We recognise the significant impact that Friedreich’s Ataxia can have on individuals and families and remain committed to improving care and support for people living with rare conditions through the implementation of Scotland’s Rare Disease Action Plan.
In the Official Report
No contribution in the Official Report cites S7W-04550 by reference.