Parliament Workbench
Data: Motions & questions to 19 Nov 2026

Written Question · S7W-04550 · Session 7

What assessment it has undertaken to establish the number of patients living with Fredericks Ataxia in Scotland. 

Answered Asked by Mark Griffin Lab Lodged 27 Oct 2026

The question

To ask the Scottish Government what assessment it has undertaken to establish the number of patients living with Fredericks Ataxia in Scotland.

The answer

Answered by Maree Todd on 10 Nov 2026 · 14 days after it was lodged, on time

The Scottish Government has not undertaken a specific assessment to establish the number of people living with Friedreich’s ataxia in Scotland.As a rare condition, prevalence estimates are generally derived from published research and clinical expertise rather than routine national data collection.We recognise the significant impact that Friedreich’s Ataxia can have on individuals and families and remain committed to improving care and support for people living with rare conditions through the implementation of Scotland’s Rare Disease Action Plan.

In the Official Report

No contribution in the Official Report cites S7W-04550 by reference.