What action it is taking to support the diagnosis, guidance and care for people living with Ehlers-Danlos syndromes and hypermobility spect…

Through Scotland’s Rare Disease Action Plan, we are taking forward actions to improve support for people with Ehlers-Danlos syndromes (EDS) and related conditions, including hypermobility spectrum disorders (HSD). This includes work to support earlier diagnosis, increase awareness among healthcare professionals, and improve coordination of care and access to services. The Rare Disease Action Plan Progress Report, published on 27 February 2026, provides an update on progress to date.While the Scottish Government sets the strategic policy direction for the NHS in Scotland, the delivery of healthcare services is the responsibility of local NHS Health Boards, in line with national guidance and population needs.