Written Question · S5W-11803 · Session 5
How many (a) live births of children and (b) terminations of fetuses with Down's syndrome there have been in each year since 1999, and what…
The question
To ask the Scottish Government how many (a) live births of children and (b) terminations of fetuses with Down's syndrome there have been in each year since 1999, and what information it has on records in previous years.
The answer
The number of (a) live births and (b) terminations of pregnancy with Down’s syndrome since 1999 are provided in Table 1a and Table 1b.
For (a) live births, the data has been sourced from the Scottish Perinatal Infant Mortality and Morbidity Reports (SPIMMR), using data collated from the Scottish Stillbirth and Infant Death Survey. The last SPIMMR report published by ISD was in March 2014 for stillbirths and infant deaths registered in 2012. Since all infants were followed up for one year after birth to allow detection from hospital inpatient records and NRS death registrations, the latest available data is for 2011. In January 2013, the Scottish Stillbirth and Infant Death Survey was replaced by a revised UK survey, MBRRACE-UK (Mothers and Babies Reducing Risk through Audit and Confidential Enquiries across the UK).
Table 1a
Down's syndrome1 in live singleton births (ICD10 code: Q90 Down's syndrome)
Year
Number
1999
62
2000
59
2001
51
2002
35
2003
49
2004
63
2005
56
2006
44
2007
67
2008
59
2009
71
2010
48
2011
58
Notes
i) These data are derived from the congenital anomaly data published in the Scottish Perinatal and Infant Mortality and Morbidity Report (SPIMMR) collected via the Scottish Stillbirth and Infant Death Survey (SSBID).
ii) In order to determine the number of live births, the number of stillbirths with Down's syndrome (reported to SSBID) have been removed form the table above.
iii) The last SPIMMR report published by ISD was in March 2014 for stillbirths and infant deaths registered in 2012.
iv) Since all infants were followed up for one year after birth to allow detection from hospital inpatient records and NRS death registrations, the latest available data is for 2011.
Table 1b
Termination of pregnancy with Down's syndrome (ICD10 code: Q90 Down's syndrome)
Year
Number
1999
37
2000
32
2001
35
2002
32
2003
36
2004
35
2005
30
2006
41
2007
37
2008
29
2009
27
2010
23
2011
33
2012
30
2013
30
2014
48
2015
47
2016
46
For (a) live births, the data has been sourced from the Scottish Perinatal Infant Mortality and Morbidity Reports (SPIMMR), using data collated from the Scottish Stillbirth and Infant Death Survey. The last SPIMMR report published by ISD was in March 2014 for stillbirths and infant deaths registered in 2012. Since all infants were followed up for one year after birth to allow detection from hospital inpatient records and NRS death registrations, the latest available data is for 2011. In January 2013, the Scottish Stillbirth and Infant Death Survey was replaced by a revised UK survey, MBRRACE-UK (Mothers and Babies Reducing Risk through Audit and Confidential Enquiries across the UK).
Table 1a
Down's syndrome1 in live singleton births (ICD10 code: Q90 Down's syndrome)
Year
Number
1999
62
2000
59
2001
51
2002
35
2003
49
2004
63
2005
56
2006
44
2007
67
2008
59
2009
71
2010
48
2011
58
Notes
i) These data are derived from the congenital anomaly data published in the Scottish Perinatal and Infant Mortality and Morbidity Report (SPIMMR) collected via the Scottish Stillbirth and Infant Death Survey (SSBID).
ii) In order to determine the number of live births, the number of stillbirths with Down's syndrome (reported to SSBID) have been removed form the table above.
iii) The last SPIMMR report published by ISD was in March 2014 for stillbirths and infant deaths registered in 2012.
iv) Since all infants were followed up for one year after birth to allow detection from hospital inpatient records and NRS death registrations, the latest available data is for 2011.
Table 1b
Termination of pregnancy with Down's syndrome (ICD10 code: Q90 Down's syndrome)
Year
Number
1999
37
2000
32
2001
35
2002
32
2003
36
2004
35
2005
30
2006
41
2007
37
2008
29
2009
27
2010
23
2011
33
2012
30
2013
30
2014
48
2015
47
2016
46
In the Official Report
No contribution in the Official Report cites S5W-11803 by reference.