Written Question · S3W-40287 · Session 3
What review it has undertaken on Recommendation 11 of The Mackie Report: Access to specialist neuromuscular care and social care in Scotlan…
The question
To ask the Scottish Executive what review it has undertaken on Recommendation 11 of The Mackie Report: Access to specialist neuromuscular care and social care in Scotland by the Cross Party Group on Muscular Dystrophy.
The answer
The enzyme replacement therapy for Pompe disease, Myozyme, has been appraised by the Scottish Medicines Consortium, but was not recommended for routine use within NHS Scotland.
In such circumstances, NHS boards have arrangements in place to consider treatment requests from individual patients. Such decisions are made on a case by case basis, exercising professional judgement on clinical need.
In such circumstances, NHS boards have arrangements in place to consider treatment requests from individual patients. Such decisions are made on a case by case basis, exercising professional judgement on clinical need.
In the Official Report
No contribution in the Official Report cites S3W-40287 by reference.