Muscular Dystrophy "My Life" Campaign

The motion

That the Parliament notes that there are 3,000 people in Scotland with inherited neuromuscular disorders and muscular dystrophy; is concerned that in Cumbernauld & Kilsyth, whilst some constituents tell of good provision of electric wheelchairs and praise the staff delivering social services care, some have never received a full needs assessment of their home environment and can only experience care services delivered via an inflexible system weighted towards older people that does not accommodate the lifestyle that other young people are able to enjoy; notes that this is an example of the variation in standards and availability of care, service and equipment provision across Scotland; supports the work of the Muscular Dystrophy Campaign in pioneering the search for treatments and cures for over 40 years, whilst also providing practical, professional and emotional support for people affected by neuromuscular conditions; in particular, supports the Muscular Dystrophy “My Life” campaign and its work in Scotland to encourage a co-ordinated approach by local authorities and NHS boards when assessing individuals’ needs and requirements, and considers the findings of the “My Life” expert group to be a model for future delivery of services to people affected by neuromuscular conditions.


No recorded vote on this motion. Most motions are never debated, and many that are debated are agreed without a division. Vote records are published from 2011.

Lab 24 SNP 11 Con 6 Green 3 Ind 3 LD 3 SSP 3 No party recorded 2

Party shown is each supporter’s party when the motion was published.

No contribution in the Official Report cites S2M-04228 by reference.