Parliament Workbench
Data: Motions & questions to 19 Nov 2026

Written Question · S3W-40247 · Session 3

What guidance is provided to NHS boards regarding exceptional prescribing arrangements in relation to funding orphan and ultra-orphan medic…

Answered Asked by Dr Richard Simpson Lab Lodged 3 Mar 2011

The question

To ask the Scottish Executive what guidance is provided to NHS boards regarding exceptional prescribing arrangements in relation to funding orphan and ultra-orphan medicines not recommended by the Scottish Medicines Consortium.

The answer

Answered by Nicola Sturgeon on 16 Mar 2011 · 13 days after it was lodged, on time

The Scottish Government is developing national good practice guidance in relation to NHS boards management of individual patient treatment requests, previously known as exceptional prescribing requests, for all newly licensed medicines, including orphan medicines, that have not been recommended by the Scottish Medicines Consortium.
The guidance, which aims to support local decision-making on individual patient treatment requests through a consistent approach, will be published in due course.

In the Official Report

No contribution in the Official Report cites S3W-40247 by reference.