Parliament Workbench

Petition · PE01726 · Session 5

Primary Hyperparathyroidism

Closed Submitted 19 Jun 2019 Health
Signatures
0
9 online signatures with a country
Comments
2
Considered
3 meetings
in the Official Report

What it asks

Calling on the Scottish Parliament to urge the Scottish Government to—
raise awareness, particularly amongst GPs and other medical practitioners, of the symptoms, diagnosis and effective treatment of Primary Hyperparathyroidism (PHPT) caused by adenoma;
provide access to minimally invasive surgery in Scotland for the treatment of this condition and;
provide funding for research into PHPT caused by adenoma.

What the petitioner did first

I have written several letters to the Scottish Government about the issues raised in the petition. Responses to date demonstrate a lack of awareness and understanding of the condition of PHPT, including confusing the condition with thyroid conditions, which are completely unrelated.
I have requested a meeting with a previous Cabinet Secretary for Health and a Minister for Health, to raise the issues covered in the petition. I was informed that they did not have time to meet to discuss the issues.

Where it was considered

Official Report
  1. 12 Sep 2019
    1 mention
  2. 20 Feb 2020
    Public Petitions Committee
    Continued Petitions
    1 mention
  3. 1 Oct 2020
    Public Petitions Committee
    Continued Petitions
    1 mention

Signatures by country

9 online signatures
  1. Scotland7 77.8%
  2. United Kingdom1 11.1%
  3. England1 11.1%

Comments

2 comments, oldest first
  1. DONNA BROWN 20 Jun 2019
    ITS GOOD TO SEE SOMEONE PETITION ABOUT THIS OFTEN OVERLOOKED CONDITION. I HAVE PERSONAL EXPERIENCE OF THIS AND AM STILL FIGHTING FOR PROPER TREATMENT DESPITE HAVING A 10MM ADENOMA
  2. Laura Irvine 25 Jun 2019
    Having spoken to someone who suffered frm this condition for a long time and who fought for treatment, it seems that raising awareness could alleviate a lot of suffering AND reduce costs in the long run.