Parliament Workbench

Petition · PE01714 · Session 5

Interstitial Lung Disease and Home Management

Closed Submitted 26 Nov 2018 Health
Signatures
0
349 online signatures with a country
Comments
26
Considered
2 meetings
in the Official Report

What it asks

Calling on the Scottish Parliament to urge the Scottish Government to provide funding to raise awareness of Interstitial Lung Disease and home management.

What the petitioner did first

Discussed at meeting with local MSP, Jackson Carlaw

Where it was considered

Official Report
  1. 7 Feb 2019
    Public Petitions Committee
    New Petitions
    1 mention
  2. 12 Sep 2019
    Public Petitions Committee
    Continued Petitions
    1 mention

Signatures by country

349 online signatures
  1. Scotland279 79.9%
  2. United Kingdom34 9.7%
  3. England20 5.7%
  4. Australia4 1.1%
  5. Northern Ireland2 0.6%
  6. Wales2 0.6%
  7. Canada2 0.6%
  8. United States2 0.6%
  9. Belgium1 0.3%
  10. Spain1 0.3%
  11. 2 other countries2 0.6%

Comments

26 comments, oldest first
  1. Jane MacLachlan 26 Nov 2018
    No awareness of ILD until family member diagnosed with condition.
  2. Alexander Ross 27 Nov 2018
    Friend of person who has disease
  3. Ivy Dodds 27 Nov 2018
    It took a long time before I was diagnosed as having a lung condition. If I'd had a chest X-Ray sooner I feel my fibrosis would have been diagnosed long before it was. An earlier diagnoses would possibly have meant I would have received the neccesary treatment, I would have been able to continue working and my life would not be as restricted as it is now. Consultants do a fantastic job, but if patients are referred too late it is harder for them to treat patients. I have never smoked. Early diagnoses would prolong lives and perhaps save money. Specialist ILD nurses play a vital part in helping patients manage their illness. More nurses would also support consultants in the improvement of care.
  4. Adrienne Cina 27 Nov 2018
    No awareness of of ILD until neighbour sent link to this petition.
  5. James MacLachlan 27 Nov 2018
    No awareness of ILD until diagnosed
  6. Andrew Grainger 2 Dec 2018
    I completely endorse the petition for government funding to help raise awareness and better inform people about interstitial lung disease.
  7. Stuart Anderson 4 Dec 2018
    It's a horrible desease ,l have ms that's a stinker to good luck with petition ,SNP government should be doing more to help
  8. Margaret Kilpatrick 4 Dec 2018
    It's a horrible disease and definitely needs funding to raise awareness
  9. Jean Watson 5 Dec 2018
    This is a horrible creeping isolating disease that can affect anyone, even non smokers. It restricts and shortens lives. There is no cure. Increased awareness and early diagnosis is essential to ensure appropriate help and any treatment that is available.
  10. William Lawson 5 Dec 2018
    Unaware of this condition until friend diagnosed with this condition.
  11. Thomas Bradford 5 Dec 2018
    Family member had this illness for 6 years. It's horrendous to watch someone deteriorate and know there no betterness.
  12. Allison Bradford 5 Dec 2018
    Family member passed away from this illness.More awareness would be beneficial to help others with this debilitating disease.
  13. Jean Niven 5 Dec 2018
    Family member sadly passed away having suffered from this awful condition.More needs to be done to bring awareness of this condition.
  14. Frank Toner 6 Dec 2018
    It is vital that there is more public awareness of ILD and support at home. Well done to the petitioners for raising this important issue.
  15. Kerrie Speirs 6 Dec 2018
    Need to start raising awareness of this debilitating disease
  16. Sandra Grieve 7 Dec 2018
    Increasing awareness of the disease and research to detect and treat it early can make a huge difference to the person and to their families.
  17. Anne Morris 10 Dec 2018
    More needs to be done to support people with this devasting disease ! Sadly lost our mum to PF .
  18. Hazel McCalden 22 Dec 2018
    When someone is diagnosed with a terminal illness support should be there inmediately. People are left to fend for themselves while dealing with the trauma of the illness itself and being told they don't have long to live.
  19. Adele Simpson 23 Dec 2018
    I had no awareness of this disease until a friend posted the devastating story of her mum. Definitely more awareness needed.
  20. Brenda Stokes 2 Jan 2019
    My dear husband died of I.P.F. last month.During his illness I had to research myself for any material help which was always given but not offered.It was a relief when he was admitted to Hospital where he was given expert care.
  21. Joanne Russell 3 Jan 2019
    I started with lung disease in my 20's and wasn't diagnosed until 38. So much damage was done in that time that I will now require a lung transplant as this horrible disease progresses.
  22. Suzanne ramage 4 Jan 2019
    This really needs to happen
  23. Andrew burns ure 4 Jan 2019
    Vital support is needed .
  24. Louise Baird 4 Jan 2019
    More help and awareness needs to be put towards this illness my beautiful bestie has it and its sad to see her struggle some days
  25. Lorraine Empson 4 Jan 2019
    So many people suffer in silence with this illness but it's time to raise awareness off it and get the help the people who suffer from it
  26. Gary rankine 4 Jan 2019
    Need to start raising awareness of this debilitating disease