Parliament Workbench

Petition · PE01682 · Session 5

Access to specialist support for hidradenitis suppurativa sufferers in Scotland

Closed Submitted 30 Oct 2017 Health
Signatures
0
255 online signatures with a country
Comments
24
Considered
4 meetings
in the Official Report

What it asks

Calling on the Scottish Parliament to urge the Scottish Government to establish a specialist clinic for hidradenitis suppurativa sufferers in Scotland.

What the petitioner did first

I have met with Bob Doris MSP and Jamie Hepburn MSP

Where it was considered

Official Report
  1. 24 May 2018
    Public Petitions Committee
    New Petitions
    1 mention
  2. 27 Jun 2019
    Public Petitions Committee
    Continued Petitions
    1 mention
  3. 5 Dec 2019
    Public Petitions Committee
    Continued Petitions
    1 mention
  4. 17 Sep 2020
    Public Petitions Committee
    Continued Petitions
    1 mention

Signatures by country

255 online signatures
  1. Scotland133 52.2%
  2. United States34 13.3%
  3. Denmark17 6.7%
  4. United Kingdom14 5.5%
  5. England13 5.1%
  6. Germany12 4.7%
  7. Italy8 3.1%
  8. Ireland4 1.6%
  9. Australia4 1.6%
  10. France3 1.2%
  11. 8 other countries13 5.1%

Comments

24 comments, oldest first
  1. Darlene Lacombe 22 Dec 2017
    Hopefully this is achieved and hopefully Canada will follow suit
  2. Eris Hilburn 22 Dec 2017
    As a patient with hidradenitis supprativa access to specialized doctors is of utmost importance to my care and well being. Because this disease effects betweem 1-4% of the population, many physicians that are not trained in a specialty are unable to give proper care and understanding to this little known disease.
  3. Louise 22 Dec 2017
    Hope this is put in place xx
  4. Sharon boyd 22 Dec 2017
    Hope this happens for all suffers
  5. Steve Baxter 23 Dec 2017
    If there was a specialist clinic my daughter might still be alive today !!!!!
  6. Bente Villumsen 23 Dec 2017
    Propel with Hidradenitis Suppurativa in Scotland should have the same possibilities as we do in Denmark.
  7. Claire Warren 24 Dec 2017
    Hope Scotland gets a clinic to help battle this disease
  8. Martin Stafflinger 27 Dec 2017
    www.akne-inversa.org
  9. Anita Stunell 28 Dec 2017
    In support of family and friends abroad
  10. Stuart Robertson 29 Dec 2017
    Having specialists who know what they are dealing with and know how to treat illnesses that affect your life in horrendous ways is surely a good thing. A lot of gp's don't know much about anything.
  11. Fawn Griswold 30 Dec 2017
    As a patient myself and living with Hidradenitis Suppurativa since the age of 9 there is a real need for specialized clinics, doctors and public awareness around the world.
  12. Janice Bernacchi 3 Jan 2018
    A range of Help and support for sufferers is needed as is an earlier diagnosis
  13. Nuala 5 Jan 2018
    In been through lots of areas consistency is a problem in treatment
  14. Lorraine kerr 5 Jan 2018
    There's all sorts of help and support for other conditions why not this. It's as bad and painful for these sufferers please think about opening a clinic to help ease this condition.
  15. Moira Mae Underwood 6 Jan 2018
    As a patient who has suffered with Hs for many years I know how important it is to get timely help. If this terrible disease is caught early enough it can be manageable. However, if left it can cost the economy so much more in lost work hours, increase in benefit use and increase use of primary and secondary care.
    It is time HS sufferers are given the care and attention we deserve!
  16. Jane Roberts 6 Jan 2018
    Have suffered with this awful condition for 32 years. We need a specialised treatment centre that has doctors nurses etc that know all about HS.
  17. Donna McKibbens 6 Jan 2018
    A dedicated treatnent centre for those of us with HS is a necessity. Few health care professionals are not aware of the condition at all...patients and health carenworkers need more information help and access to local dedicated centres.
  18. Bill McCafferty 6 Jan 2018
    please subscribe to this petition
  19. Vivienne kerr 7 Jan 2018
    I hope it raises more awareness for health proffesionals who still don't have a clue and have never heard of HS !
  20. Mairi breckon 8 Jan 2018
    More needs to be done to highlight and treat this horrible skin condition that robs you of your life.
  21. Pamelia Long 8 Jan 2018
    both my daughter and grand daughter plus a close friend have HS and I feel stronglyt that not enough is being done to help people suffering from it. x
  22. THOMASHAW 17 Jan 2018
    GOOD
  23. Andrewwilson 26 Jan 2018
    Well done jimmy good luck
  24. Lyn Lennox 27 Jan 2018
    My daughter (in Scotland) has this debilitating, horrendous condition and the support and public awareness of it is non existent. Do something positive for the sufferers of whom there are many