Parliament Workbench

Petition · PE01629 · Session 5

MRI scans for Ocular Melanoma sufferers in Scotland

Closed Submitted 5 Nov 2016 Health
Signatures
0
365 online signatures with a country
Comments
56
Considered
10 meetings
in the Official Report

What it asks

Calling on the Scottish Parliament to urge the Scottish Government to ensure NHS Scotland recognise patients with Ocular Melanoma and enable them to receive enhanced MRI scans with contrast of the liver in an attempt to detect early metastatic disease.

What the petitioner did first

I have attempted to have NHS Scotland change their decision not to provide enhanced MRI scans with contrast via communication from MSPs, they continued to refuse. I have also written to past and present Health Secretaries for Scotland. Present Health Secretary failed to respond. I have started a change.org petition receiving almost 500 signatures to date.

Where it was considered

Official Report
  1. 2 Feb 2017
    Public Petitions Committee
    New Petitions
    1 mention
  2. 27 Apr 2017
    Public Petitions Committee
    Continued Petitions
    1 mention
  3. 29 Jun 2017
    Public Petitions Committee
    Continued Petitions
    1 mention
  4. 21 Dec 2017
    Public Petitions Committee
    Continued Petitions
    1 mention
  5. 28 Jun 2018
    Public Petitions Committee
    Continued Petitions
    1 mention
  6. 22 Nov 2018
    Public Petitions Committee
    Continued Petitions
    2 mentions
  7. 24 Jan 2019
    Public Petitions Committee
    Continued Petitions
    1 mention
  8. 26 Sep 2019
    Public Petitions Committee
    Continued Petitions
    1 mention
  9. 16 Jan 2020
    Public Petitions Committee
    Continued Petitions
    1 mention
  10. 5 Mar 2020
    Public Petitions Committee
    New Petitions
    1 mention

Signatures by country

365 online signatures
  1. Scotland144 39.5%
  2. England83 22.7%
  3. United States46 12.6%
  4. United Kingdom39 10.7%
  5. Wales16 4.4%
  6. Northern Ireland12 3.3%
  7. Netherlands5 1.4%
  8. Germany5 1.4%
  9. Australia4 1.1%
  10. Ireland2 0.5%
  11. 7 other countries9 2.5%

Comments

56 comments, oldest first
56 comments · showing 1–50
  1. Alice Church 16 Nov 2016
    I disagree with a health code lottery
  2. Diane Lemaitre 16 Nov 2016
    Ocular melanoma took my mother's life when the spread of this was not detected until it was too late. An MRI scan could have saved her life by giving her the treatment she needed early enough
  3. Julie morton 16 Nov 2016
    It's so important for everyone to have mri regular to detect early mets x ultrasounds are useless if ocular melanoma spreads to liver ect would and could be lifesaving for us .. unfair some get and some don't...
  4. Clare davies 16 Nov 2016
    Fully support this petition.
  5. Irene mckirdy 17 Nov 2016
    Let's support a good cause
  6. Jane Turland 17 Nov 2016
    For patients with Ocular Melanoma it is the only option for precise detection of liver secondaries early enough to offer some intervention to prolong life
  7. Jacqueline Quinn 17 Nov 2016
    MRI scans are extremely important in detecting early metastatic disease in those with Ocular Melanoma, enabling patients to access life prolonging treatment.
  8. Vivienne Sutherland 17 Nov 2016
    Give them the treatment that they need and hopefully stop the number of deaths multiplying
  9. pamela munro 17 Nov 2016
    Everyone should get every treatment possible
  10. Jeanette walker 17 Nov 2016
    My daughter has this rare cancer and she had her fellow patients in Scotland deserve the same procedures as others in England and Wales. They should NOT have to fight for these scans....
  11. Debbie Paton 18 Nov 2016
    Calling on the Scottish Parliament to urge the Scottish Government to ensure NHS Scotland recognise patients with Ocular Melanoma and enable them to receive enhanced MRI scans with contrast of the liver in an attempt to detect early metastatic disease.
  12. Andrea Floan 18 Nov 2016
    Everyone has the right to treatment
  13. Beth Broadley 18 Nov 2016
    Give these pt's what they are legally entitled to,all people deserve the best
  14. Michelle Cloney 20 Nov 2016
    Help these sufferers and give them some peace of mind.
  15. Cheryl Howard 20 Nov 2016
    Treatment saves lives!
  16. Angela Bell 20 Nov 2016
    Fully support a good cause.
  17. samantha campbell 20 Nov 2016
    please do the right thing
  18. Jackie Traynor 20 Nov 2016
    Earliest detection of metastases is imperative to our lives. We are relatively small in number compered to other cancer types, but our lives are just as important
  19. Cathy Matthews 20 Nov 2016
    Everyone should be entitled to good medical treatment.
  20. Lewis Weston 20 Nov 2016
    Scotland should adopt the same standards of diagnostic criteria as we have in England ... we are a
    United Kingdom!
  21. Anita Cramer 20 Nov 2016
    MRIs are imperative to detecting metastasis before it's too late.
  22. lissa hendren 21 Nov 2016
    Treatment should be available
  23. Terri robson 21 Nov 2016
    Cancer screening is the most vital preventive action that can be taken. Catching cancer early should be Scotlands and the rest of the UKs priority. All the best Jennie
  24. Peter McKenna 21 Nov 2016
    Everyone with Ocular Melanoma should have equal treatment no matter where they live
  25. Iain Galloway 21 Nov 2016
    I am a stage IV ocular melanoma sufferer and know that this type of scan saved my life by picking up the cancer spread early, certainly I've had three good years clear since! I also run the European ocular melanoma patient group, MPNE Ocular, and have spoken to numerous oncologists (importantly, ones who specialise in dealing with metastatic spread of this particular disease) who unanimously agree that MRI scanning is the most appropriate for checking for cancer spread. It is certainly the option they would choose for their loved ones.
  26. Joanna Dallas 21 Nov 2016
    Equal opportunity for ocular melanoma patients to access life prolonging treatment can only be achieved if all patients have access to MRI scans. The current system is creating a postcode lottery, that people south of the border are winning (one of whom is my husband). I feel so lucky he has access to regular MRI scans and want Scottish patients to have the same.
  27. joanne Finnegan 22 Nov 2016
    A health service can save money and extend a patients life by using an MRI to detect cancer at an early stage when there's a better chance of treatment working. An MRI is seen as best practice.
  28. Elizabeth Lennon 22 Nov 2016
    I believe early detection through MRI scans can save the patients sight
  29. James Clifford 22 Nov 2016
    This is important to be done without delay. Early detection is the only defense against this disease.
  30. Christina Hogg 22 Nov 2016
    This is crucial as early detection is the most important factor in helping someone.
  31. Stephen Dallas 22 Nov 2016
    Early scans should be available as steps are being made to be able to 'manage' metastatic disease in early detection. Scots patients should have these scans as early detection can prolong their lives in a meaningful way.
  32. Laurie Kahn 23 Nov 2016
    My mother and brother both died of ocular melanoma, which when it metastasizes goes to the liver. Please if you can prolong life with early detection, you should use those resources. I am so sorry that patients have to resort to petitions to get the care they need.
  33. Jo Gumbs 24 Nov 2016
    All cancer patients should be allowed screening to detect disease as early as possible. Whilst there are no centres of excellence recognised in the surveillance of ocular melanoma, I feel patients wishes on the modality of scanning should be recognised.
  34. Janet Garland 25 Nov 2016
    Ocular Melanoma patients in Scotland should be offered regular MRI scans to check for metastasis which is prevalent in this condition and type of cancer. It is offered in other parts of the U.K. Not to provide MRI as routine is discriminatory to OM patients in Scotland
  35. Robert Miller 26 Nov 2016
    I find it difficult to understand why we even have to petition, for anything that can detect a disease and prolong the quality of a person life, it that not what the health service preaches. People should be given every opportunity when it comes to their health
  36. Lissa hendren 26 Nov 2016
    Scans should be done asap
  37. Moira Johnston 28 Nov 2016
    Don't understand why this is not in place already people who are suffering need this
  38. Nicola Hendren 28 Nov 2016
    Scans should be available
  39. Judith Hyde 29 Nov 2016
    Please help
  40. eddie hotchkiss 29 Nov 2016
    It makes sense
  41. Kirsty Anderson 29 Nov 2016
    These scans could make a huge difference to patients.
  42. Colin jackson 30 Nov 2016
    As a fellow sufferer who lost an eye in July I can't understate the importance of M.R.I s for our continued wellbeing
  43. Susan Smith 1 Dec 2016
    MRI scans with contrast are vital. Without one my husband's metastatic ocular melanoma would not have been found at an early stage.
  44. Barbara Ann Stewart 1 Dec 2016
    Scans are essential.
  45. Karen 2 Dec 2016
    PLEASE. Same cancer same help...
  46. Gillian Parsons 2 Dec 2016
    Equal healthcare throughout the U.K. Is needed
  47. Johanne Blake 2 Dec 2016
    Fair treatment for all in the UK
  48. Shelagh Vincent 2 Dec 2016
    Please help these patients
  49. Peter 4 Dec 2016
    We are a United Kingdom It should not matter were we live treatment should be equal
  50. Carol Lekstutis 5 Dec 2016
    This test is the most important test to have every 6 months