Parliament Workbench

Petition · PE01566 · Session 4

A National Service Delivery Model for Warfarin Patients

Closed Submitted 16 Feb 2015 Health
Signatures
0
597 online signatures with a country
Comments
57
Considered
4 meetings
in the Official Report

What it asks

Calling on the Scottish Parliament to urge the Scottish Government to implement a National Service Delivery Model to ensure that all NHS boards have the resources to assess warfarin patients who request (i.e. self-present) for self-testing and/or self-management their condition.

What the petitioner did first

On 8 October 2013, Nanette Milne MSP sponsored a round table meeting held at the Scottish Parliament, which involved clinicians who support patients on anti-coagulation therapy and politicians.
In 2014, a number of MSPs have also tabled PQs on this issue: Richard Simpson (S4W-06247); Richard Lyle (S4W-20108, S4W-20110, S4W-20111), Jackie Baillie (S4W-20102, S4W-20103, S4W-20104) and Margaret McCulloch (S4W-20176). On 1 April 2014, Nanette Milne's motion S4M-09430: "Self-management of Anticoagulation Therapy" was debated. In response, letters were published in national newspapers and the AntiCoagulation Self-Monitoring Alliance (ACSMA) sent letters to the Members of the Health and Sport Committee.
The petitioner wrote on numerous occasions to Michael Matheson MSP in his capacity as Minister of Public Health at the time. The petitioner also published a letter in the Herald on 16 May 2014.
Following this publicity, the petitioner met with the CEO of Greater Glasgow and Clyde Health Board and the Clinical Manager of Anti Coagulation Services who are now developing a local model of care for paediatric warfarin patients moving to adult care services in the area.

Where it was considered

Official Report
  1. 23 Jun 2015
    Public Petitions Committee
    New Petition
    1 mention
  2. 6 Oct 2015
    Public Petitions Committee
    Continued Petitions
    1 mention
  3. 8 Dec 2015
    Public Petitions Committee
    Continued Petitions
    1 mention
  4. 9 Feb 2016
    Public Petitions Committee
    Continued Petitions
    1 mention

Signatures by country

597 online signatures
  1. Scotland472 79.1%
  2. United Kingdom71 11.9%
  3. England37 6.2%
  4. United States8 1.3%
  5. Northern Ireland2 0.3%
  6. Australia2 0.3%
  7. New Zealand1 0.2%
  8. Ireland1 0.2%
  9. Hong Kong1 0.2%
  10. Armenia1 0.2%
  11. 1 other countries1 0.2%

Comments

57 comments, oldest first
57 comments · showing 1–50
  1. Bill Paton 23 Mar 2015
    I am happy to support this petition, which if successful will benefit patient on Warfarin and
    make their condition easier to manage.
  2. Alastair Brookes 24 Mar 2015
    As a life long Warfarin user I would urge as many people as possible to support this petition.
  3. Trudie Lobban 27 Mar 2015
    Visit www.afa.org.uk for more information on AF and self monitoring
  4. anna wilson 2 Apr 2015
    We test my child's INR at home and wouldn't like that to stop when he reaches adulthood.
  5. Mhairi Biggart 2 Apr 2015
    This is a great idea.
    Patients should be given the choice to manage their own condition.
  6. Jackie kelly 3 Apr 2015
    You go girl xx
  7. Nicola Reilly 3 Apr 2015
    I fully support this petition and I urge others to sign up.
  8. gail hendry 4 Apr 2015
    You are such an inspiration mary x
  9. Elaine Provan 4 Apr 2015
    Please allow patients with lifelong conditions the opportunity to have a say in their treatment
  10. John Fegan 4 Apr 2015
    I am hopeful this petition is successful as it will enable patients to manage their condition being involved in their own care
  11. Manjit Ram 5 Apr 2015
    Hope I never need it but may it be available to those who do.
  12. Pennie Taylor 8 Apr 2015
    Surely it makes sense to empower people to self-care if that is what they wish?
  13. Anne Marie McFadyen 11 Apr 2015
    I whole heartedly agree with this petition to the Scottish Government. It wasn't that long ago that people required to go to their surgery or hospital to test and manage diabetes, in all weathers. The Scottish Government need to to have faith and trust in the Scottish people, children and their parents, carers to self test and manage their INR.
    The Scottish Government is focusing on the awareness, testing and management in overall health and wellbeing for the Scottish population, therefore give people and children on warfarin a chance to' gaun thersel' they deserve it.
  14. Anne Marie McFadyen 11 Apr 2015
    This petition could make a tremendous difference to peoples lives. Self awareness, testing and management is definitely the way forward.
  15. Amanda 13 Apr 2015
    This would make things so much easier, especially when you may need to attend a clinic quure regularly but are delayed by the vast amount of new patients that need a much longer appointment time.
  16. Gillian Harris 14 Apr 2015
    This would help those who have difficulties getting to and from clinics regularly ,promote independence and help people who require warfrin manage they're condition own conditions as hassle free as possible,it can be done for insulin dependant diabetes so why not for inr ?
  17. Arlene Caldwell 14 Apr 2015
    100% behind this petition! I debated this same issue over 10 years ago as a pharmacy student. Shocked that self-testing isn't readily available..
  18. Andrea McDonald 14 Apr 2015
    Excellent idea which will benefit so many people
  19. Lesley Kinnear 14 Apr 2015
    100% back this, i have a child on Warfarin who does home testing and did not realise that this does not continue when they reach adult hood.
  20. Ishbel Dougans 14 Apr 2015
    I Fully support this petition
  21. Julie Matthews 15 Apr 2015
    good luck Mary 100% behind you all on this its about time they listened to you. Maybe if they had already let you test then you wouldn't have had to wait as long as you have to try to get things fixed.
  22. Carolanne leisk 15 Apr 2015
    nhs should make these meds more accessible to patients
  23. Jacqueline McCafferty 15 Apr 2015
    Good luck
  24. Patricia Stevenson 15 Apr 2015
    I believe that everyone has the right to live there life's and that there should be no price on what it takes to allow that person to live a full life. All medications should be made available to everybody no matter where or when. Good Luck Mary I totally support your petition xx
  25. Sandra Parkins 15 Apr 2015
    Self testing saves everyone time and money and gives independence to the person taking warfarin.
  26. Tom Stevenson 15 Apr 2015
    A very worth while cause
  27. jean clarke 16 Apr 2015
    Good luck .. I hope yous get what you need
  28. Nikki Stewart 16 Apr 2015
    Good Luck !!!
  29. Fiona Wherrett 16 Apr 2015
    I had to start taking warfarin almost a year ago to help control my AF symptoms. I would love to be able to self-manage my INR, as the distance between my work and doctors makes it easier to take a half day off work on test day. Though I have a very understanding boss, with our workload and staffing, its not always convenient for me to be off. If diabetics can self-manage their tests, why can't those who have to have INR tests?
  30. Doreen Robertson 16 Apr 2015
    Good Luck.
  31. Alexandra Allan 17 Apr 2015
    I do self test. My GP has been very helpful and supportive. I purchased the Coagucheck machine myself and my GP prescribed the test strips. It makes such a difference being able to test my INR myself.
  32. Jackie Gumme 20 Apr 2015
    I fully support enabling people to take control of their own health with expert support. Anticoagulation self-testing and or management has been shown to improve patient experience and control.
  33. PETER HEPBURN 22 Apr 2015
    MY FAMILY GIVER IT OUR FULL SUPPORT
  34. Mary Hemphill 22 Apr 2015
    We are requesting the Scottish Government to update guidance notes to reflect the new guidance, as noted below which details warfarin self testing and or self management as a safe alternative. A National Service Delivery Model will ensure health professionals throughout our Health Boards are given time and resource to provide that patient centred care approach in line with the Scottish Governments 2020 Vision. The Scottish Government writes fantastic protocol on self management, with the self management strategy Gaun Yersel written by patients with long term conditions for patients with long term conditions. We are requesting the Scottish Government to stand by that commitment and support and cheer our difficult journeys as patients. We have worked with Greater Glasgow and Clyde Health Board that has been well recieved and greatly appreciated.
    SIGN 129 makes the following Grade A recommendation Self monitoring and self dosing is safe and effective and can be considered for some patients.
    The Royal College of Physicians Edinburgh Consensus Statement states that Anticoagulant control may be improved by near patient testing and engaging patients in their own care patient education should be supported at every stage and
    NICE recommends the use of some coagulometers by people taking long-term anti blood clotting therapy if they prefer and are able to effectively use this type of monitoring see guideline published in September 2014.
  35. mrs alison mcacnn 24 Apr 2015
    good luck guys.
  36. Sharon McGachy 24 Apr 2015
    Admiring your spirit and drive, good luck, hope you achieve what you are pushing for.
  37. Lesley sharp 24 Apr 2015
    Let's make this happen now x
  38. Julie Simpson 24 Apr 2015
    As a long term warfarin patient I have been self testing while living in England for the past 7 years. I was very surprised and disappointed to hear that this was not recognised as a option when I recently returned to live in Scotland. Self testing is much more convenient for many patients and must be less burden on the Nhs. I'm strongly in favour of this petition.
  39. lynne joyce 24 Apr 2015
    good on u mary x u such an inspirational woman x x x
  40. Teresa mcgachy 25 Apr 2015
    Your a fighter Mary ,you'll win good luck,our lady of Lourdes will help you xx
  41. Chris Campbell 25 Apr 2015
    Warfarin patients should be given the option, and even encouraged to self-test. Making these test devices available, will free-up valuable time for GPs and hospitals, and remove the need for patients to travel, in many cases under difficult conditions, especially in winter.
  42. Chris Gill 28 Apr 2015
    A worthwhile goal with clear benefits, I wish you every success in this campaign.
  43. Elizabeth Marrs 29 Apr 2015
    my mum had a triple heart op and as a result is on warfarin. Whilst it wouldn't be for everyone it should be an option to self test. It means the elderly who can't do it themselves have more care and attention when they do go as the able are doing it from home x
  44. Thomas Bradford 29 Apr 2015
    to self test is a great idea saves surgery time for somebody else who might be more needy of the nurses time
  45. Clair ferguson 29 Apr 2015
    Petition signed!
  46. lyndsey williams 29 Apr 2015
    patients should be given the right to self test themselves. This will give the nhs staff more time to other stuff, will also means less travelling for patients
  47. Andrea McDonald 29 Apr 2015
    I am a nurse and Mary Hepburn is a friend's sister. I think this would be so worthwhile for so many people
  48. Evelyn Irvine 29 Apr 2015
    We need a delivery model to give patients control over their condition.
  49. Zoe Sweeney 29 Apr 2015
    Give people the right to make their own decisions and right to support
  50. Angela Taylor 29 Apr 2015
    Cannot see any good reason why this is not done immediately